Managing Epilepsy Well

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Project Details

Description

Studies have shown that epilepsy affects all areas of life and, as a result, requires a comprehensive view of self management. In partnership with the Epilepsy Foundation of Michigan and the Center for Managing Chronic Disease, the PRC/MI received Special Interest Project funding to participate in the Managing Epilepsy Well Network for Epilepsy Self Management.

The goal of the project is to study the experiences and effects of self management interventions for epilepsy and other chronic diseases, leading to an epilepsy self-management research project which will implement and test the intervention. In addition to conducting a review of the literature and existing programs to identify chronic disease and epilepsy self- management models, researchers are interviewing 100 clinical, social service, research, and other professionals who work to improve self-management of the disorder. The study team is working with an expert panel to analyze the data and make recommendations for the implementation and evaluation of promising interventions.

Presentations

Stoll, S. C. (2012, November). FOCUS on Epilepsy. American Epilepsy Society 66th Annual Meeting, San Diego, CA.
Thompson, N., Patel, A., Selwa, L., Begley, C., Fraser, R., Johnson, S., & Stoll, S. (2012, November). Preventing Depression in Epilepsy: Project UPLIFT. American Epilepsy Society 66th Annual Meeting, San Diego, CA.
Stoll, S., Gorelick, A., Derry, R., Selwa, K. R., & Clark, N. (2012, November). Skills for Better Support: Developing Self-Regulation Skills among Family Members to Improve the Quality of Informal Help Provided to Adults With Epilepsy.
Stoll, S., Gorelick, A., Derry, R., Selwa, L., Youatt, E., & Clark, N. (2011, December). FOCUS On Epilepsy: Development And Piloting Of A Program Designed To Develop Self Regulation Skills And Strengthen Social Support For Adults With Refractory Epilepsy. American Epilepsy Society 65th Annual Meeting, Baltimore, MD.
Clark, N., Derry, R., Youatt, E., Sweetman, M., & Stoll, S. (2010, December). Managing Epilepsy: Perspectives of Professionals With and Without Epilepsy [Poster]. American Epilepsy Society 64th Annual Meeting, San Antonio, TX.
Clark, N., & Stoll, S. (2010, November). Epilepsy Management: Today’s New Tools and Tactics.